Yesterday after some close monitoring by a very concerned mama, Langdon and I headed to the ER. He was turning yellow in a hurry and went from responsive to limp rag doll within a few hours.**
**He had been going downhill for about 24 hours. We had been trying at home remedies like laying naked in direct sunlight, etc. He wasn’t latching and grew weaker by the hour. By noon he was fairly unresponsive. After a few calls with his pediatrician and growing hourly concern we made the call to go. Just in time.
As we sat in the ER my family and I prayed. His breathing was shallow and his heart rate plummeted. He was orange. They couldn’t get a line on him and we couldn’t get him awake enough to eat anything.
Tests revealed he had a really BAD case of Jaundice. Normal levels are between 12-14 at his age. His were at 38. We were rushed to Texas Children’s Hospital were he has undergone intensive care. I can’t say enough about his care team.
When we arrived they spoke to us about all of our options. There was a chance he was going to need a blood transfusion. There was a chance he wouldn’t turn around. There was a chance that he has permanent brain damage. The list went on and on as they explained to us the severity of the situation.
Over the last few hours I’ve heard him cry, watched him fight with the nurses, and grow a healthy appetite back. I never thought I would be so happy to hear him cry. It’s a beautiful sound when you haven’t heard it in almost 24 hours.
I didn’t think I would be spending my first Christmas as a mother watching my newborn infant come so close to death. Watching him under blue lights as he struggles to respond. Fearing the worst and praying for the best.
The nurses and doctors seem optimistic. We will have to check for brain damage and hearing loss due to the severity of the jaundice. We continue to fight and ask for continued prayers. All the stress from the situation has caused my milk supply to drop so we’re supplementing his feedings with formula. Anything is better than nothing.
Our precious miracle needs all the prayers he can get.
His bilirubin levels have come back down to normal range. He’s at a 12.9 right now and has been taken off of the big lights. He’s still a glow worm but we’re getting there!