Our Infant Son Has Brain Cancer- HOME AGAIN!!!

PattySh

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Sending good thoughts your direction. Hoping Spencer is comfortable and wishing him a full recovery. :hugs
 

stitchcounting

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I hope everything just get better and better. I will kept Spencer and your whole family in my prayers.
When my mother was sick this lady is church said to me " God does things for a reason, you just need to stay by his feet and everything will go his way"
OF course it was in spanish so some of the funk in her lil say was lost in translation... But i'm sure you will get the message as you need it .
:hugs:)
 

pridegoethb4thefall

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Spencer is now resting comfortably after a 3 hour surgery to place a permanent shunt into his brain. The hope is it will keep his brain fluids from building up and putting pressure on his brain.

This cancer is so weird and hard to describe. It's rare to begin with, but since it is also metastatic ( means it has traveled to different places in his spine, called seeding), it means it is extremely rare. So rare that there aren't enough examples of it anywhere in the world that the docs can compare him to. Can't get a firm idea of his chances.... no one really wants to give hope in any significant way, mostly I get doom and gloom predictions... BUT, they have been wrong several times so far, and I fully expect Spencer to keep proving them wrong!

For anyone interested in this kind of stuff, the name is Pilocytic Astrocytoma. Low grade, (grade 1), metastatic seeding along the spine, benign (which does NOT mean the same thing as other cancers when you hear benign, brain cancers are kinda different) . They also call it a low grade benign Glioma.

Docs were only able to remove a small part of the tumor during his last surgery since it is entangled in his brain stem and spinal cord, Spencer also has a tumor near his pineal gland, believed to be same type and pretty much inoperable.

So....We have a long, extremely uncertain future ahead of us. I want to thank everyone so much for the prayers and moral support! It is so nice to come here and find support and kind, calming words... It's like a secret place that's just for me, a place to go where I can be real and honest and open, and I know y'all can handle it! It's so hard to be the one everyone counts on, even my hubby. I am so glad I can give my worries and fears and burdens to God, without him I couldn't remain standing.

Still working on reducing my herd. But I'm never home lately, and can't do what needs to be done to handle that. Hay is too pricey to feed goats I planned to sell anyways, but I just don't know anyone I can faithfully put in charge of that...

Good news is we still have till April till kidding season starts, so hopefully we will have Spencer's routine down enough to have a few minutes to be there for kiddings. Even through all this, I am still very excited to have new baby goats! Gonna have to sell them all, but at least I get to play with them a bit first, AND some are due later, so I get to enjoy them a bit more. Yay!
 

alsea1

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We are still praying for you little guy here in Oregon.
And for his family.
 
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