Our Infant Son Has Brain Cancer- HOME AGAIN!!!

Southern by choice

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The saints are in agreement in prayer. Believe that we are praying for a miracle for your son.


Hebrews 11:1 Now faith is the substance of things hoped for, the evidence of things not seen.

I pray the L-rd increases in abundance your faith. Trust him my sister.
Your little baby, by tomorrow will have thousands praying for him.

One day at a time. :hugs


Remember, the L-rd will provide ALL you have need of.
 

SheepGirl

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Oh my gosh, how devastating. I certainly hope he pulls through and the Doctors can find a way to treat him. :hugs
 

pridegoethb4thefall

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Don't even know what to say right now.... thank you all for your prayers and words of love.

Todays visit was devastating. The cancer was so evident...all through his spine, top to bottom. Also in his mid-brain. Like something from a horror movie. The specialist gave no hope. Inoperable, and no real treatment options. All they offer is surgery to relive the pressure of the spinal fluid that is building up on his brain, but they can't remove so much cancer. Chemo won't work, radiation won't work.

Basically its a matter of time... If we do nothing, he will pass in a matter of days or weeks, if we do invasive surgery, we may buy a few months, at best. Surgery will require 10 days in hospital, another month of home recovery, a brief period of improved mobility, followed by decline and eventual death.

Oh God.... I am destroyed. I know He is with me, but I pray for Him to heal our son completely. I don't know what to do..... how does anyone make such choices??

As for the herd, etc... How can I even sell them when the doctors want to do surgery NEXT MONDAY??? thats just not enough time...

Im gonna try to have his MRI sent to John Hopkins, St. Judes and anywhere else I can find. With 5 other kids to handle, I don't know.....I just don't know.....

I love Spencer so, so, so, much....what do I do? How do I handle this??? Spencer seems so healthy, so happy... sure, his right arm doesn't work real well, but the rest of him is doing fine, even progressing in normal ways. But his spinal fluid is barely getting through. the doctor was surprised at how well he is still functioning, but seeing the MRI shows a totally different picture on the inside.

Thats all i can write right now..
 

bonbean01

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Awww honey...this is every parent's worst nightmare...I also don't know what to say...keep the faith...many prayers for your little darling, you and your whole family. Was so hoping the MRI would show something different. For tonight...do nothing...no decisions about surgery...try to sleep best you can, and don't give up on miracles...they do happen if it is His will :hugs
 

Remuda1

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You and your entire family have been and will remain in my prayers. God bless all of you and may He hold you and keep you during this uncertain and frightening time.
 

promiseacres

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Praying.....:hugs :hugs
Wish I was near I would watch your kids....buy your goats or something! But can keep praying for God to hold you close.
have you talked to anyone at cancer treatments of America? They seem to be able to give hope when there seems to be none. It would mean more drs but I know of amazing miracles thru them.
 

Bridgemoof

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My heart goes out to you and your family, and little Spencer. I will pray for you to have strength throughout this devastating ordeal. :hugs
 

jodief100

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:hugs

This seems so inadequate but it is the best I can do.

Keep trying to contact St. Judes. They are your best hope. My little sister had a friend when she was young who went there and they were able to give her more than anyone else could.
 
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